From Physics Girl.

Dianna is Live streaming a day in her life as someone suffering from long COVID and ME/CFS.

The purpose of the Livestream is to raise money and awareness for those suffering from the disease. All funds will be going to the Open Medicine Foundation (OMF), a non-profit research organization dedicated to finding effective treatments for ME/CFS. (https://www.omf.ngo/)

The live stream will take place from 6:45 AM to 6PM. Pacific Time (PT). Hosts Kyle, Simone Giertz, and Ian Hecox will be answering your questions throughout the day. And we have scheduled pre-recorded interviews from experts in the field helping us better understand the disease as well.

Dianna will not be talking during the Livestream, she will be in bed, mostly awake, but resting all day – as she does everyday. Viewers can learn from the interviews and discussions, hear the hosts answer your questions, and of course see Dianna.

All donations can be made straight to the Open Medicine Foundation by hitting the donate button on this page.

A quick note on Dianna’s camera – The brightness you see in her room does not accurately reflect how dark it is in her room every day. The exposure is set very high on the camera. So her room appears MUCH brighter than it actually is. Dianna’s room is dark, and very dimly lit.

— SCHEDULE —

ALL DAY – Dianna live streaming

4:40 – Live stream START.
14:14 – Kyle makes breakfast.
39:29 – Dianna eats breakfast.
43:40 – Dianna reacts to hitting the goal of $10,000 dollars.
57:42 – Kyle Q&A.
1:20:06 – OPENING – Host Simone Giertz introduces the Live stream.
1:50:07 – INTERVIEW with Dr. David Kaufman, an ME/CFS specialist, and Vanessa Hill from BrainCraft.
2:26:04 – Emotional post-interview discussion with Kyle and Simone. Then Q&A.
3:12:04 – A note from Dianna – Discussion about how the disease affects women differently.
3:21:10 – Kyle answers questions.
4:19:02 – INTERVIEW with Dr. Raven Baxter, a science communicator, and Kyle Kitzmiller.
5:14:37 – Simone tries Dianna’s water.
5:16:05 – Kyle answer’s questions about Dianna’s illness.
5:33:11 – Simone makes an unwise choice.
5:41:09 – Dianna and Simone get to see each other.
5:48:55 – Dianna eat’s her second meal.
5:53:00 – Simone tries Dianna’s food & Nutrition discussion.
6:03:53 – Kyle answers more questions about Dianna’s life.
6:12:10 – Kyle talks about care-giving.
6:40:43 – Ian Hecox joins as host. Simone says goodbye.
6:50:49 – INTERVIEW with Linda Tannenbaum, founder of the Open Medicine Foundation. And Derek Muller from Veritasium.
7:44:24 – Kyle talks about the long COVID community.
8:04:09 – Kyle and Ian read comments and Q&A.
8:51:52 – INTERVIEW with Dr. David Putrino, director of CoRE Center for Complex Illnesses. And by Kyle Kitzmiller.
9:46:50 – The Live stream hits $100,000!
9:47:19 – Kyle and Ian talk about Dianna’s disease.
9:51:56 – Kyle answers questions.
10:19:14 – Ian talks with Kyle washes Dianna’s face.
10:18:50 – Dianna’s RED-LIGHT therapy.
10:22:32 – Ian and Kyle read comments and Q&A.
10:36:31 – Dianna waves goodbye.
10:38:00 – Final Q&A.
10:58:24 – Ian and Kyle wrap up. Bye for now and thank you everyone!

—

Resources

Open Medicine Foundation — https://www.omf.ngo/
Open Medicine Foundation registry — https://www.omf.ngo/studyme/
Long COVID guide to pacing — https://longcovid.physio/pacing
Dr. David Kauffman’s patreon — https://www.patreon.com/unraveledpod
Dianna’s Patreon — patreon.com/physicsgirl

https://thesicktimes.org/
https://erictopol.substack.com/
https://www.healthrising.org/

Terms/Definitions

ME/CFS — Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex multi-system disease with many symptoms that may change over time and differ from patient to patient. The most common symptoms of ME/CFS are post-exertional malaise (worsening of symptoms upon even minimal exertion), unrefreshing sleep

Long COVID — Contains a wide array of symptoms after first being infected with the SARS-CoV-2 virus that causes COVID-19, including fatigue, shortness of breath, muscle aches, dysautonomia, sleep disturbances, and what people refer to as brain fog.

Post Exertional Malaise(PEM) — A hallmark symptom of ME/CFS. People with ME/CFS often experience a worsening of symptoms after even small amounts of mental or physical exertion, resulting into what’s called a crash.